Most rare diseases are incurable. Biosensors are a technology that, driven by continuous advances in artificial intelligence, can help disease detection, lower the cost of novel therapies, replace placebo groups in clinical trials and foster patient-centred, personalised (e)-medicine.

EPRS STOA Podcast - What if biosensors could help treat rare diseases?

While killing all microorganisms in our bodies may seem tempting to some germaphobes, scientific evidence indicates that beneficial microorganisms (that live in nearly ubiquitous communities called microbiota) are an essential component of human health, and could form a new frontier for personalised medicine to fight non-communicable diseases and improve human health. In this podcast, we’ll look at the microorganisms that live in our bodies and the incredible role they play in assuring our health.

EPRS STOA podcast - What if we killed all microorganisms in our bodies?

Sairaus on harvinainen, kun siitä kärsii harva potilas. Harvinainen sairaus on silti yhteensä jopa 30 miljoonalla eurooppalaisella. Oikea diagnoosi ja hoito löytyvät usein myöhään, eikä useimpiin harvinaisiin sairauksiin ole parannuskeinoa.

Näin EU toimii harvinaisia sairauksia sairastavien henkilöiden hyväksi

ENVI Committee - Hearing of the candidate for the function of the Director of the European Centre for Disease Prevention and Control

ENVI - Exchange of views with Dr Andrea AMMON, Director of the European Centre for Disease Prevention and Control (ECDC)

Antonio TAJANI, EP President and Michael BLOOMBERG, UN Special Envoy for Cities and Climate Change and WHO Global Ambassador for Non-communicable Diseases

UNKN

Naisten ikään liittyvien sairauksien ennaltaehkäisy (lyhyt esittely)

Prevention of age-related diseases of women (short presentation)

EU:n kanta ja sitoutuminen YK:n tarttumattomien tautien ehkäisyä ja torjuntaa käsittelevän korkean tason kokouksen edellä (keskustelu)

EU position and commitment in advance of the UN high-level meeting on the prevention and control of non-communicable diseases (debate)

Alzheimerin tautia ja muita dementioita koskeva eurooppalainen aloite - Astmasumutteet (keskustelu)

European initiative on Alzheimer's disease and other dementias - Asthma inhalers (debate)

Hermoston rappeutumissairauksien, erityisesti Alzheimerin taudin torjuntakeinojen yhteinen ohjelmasuunnittelu (keskustelu)

Joint Programming of research to combat neurodegenerative diseases, in particular Alzheimer's disease (debate)

Euroopan toimet harvinaisten sairauksien alalla (keskustelu)

Rare diseases (debate)

COVI Special Committee - Exchange of views with European Centre for Disease Prevention and Control (ECDC) and Health Emergency Preparedness and Response Authority (HERA) on COVID-19 pandemic

ENVI Committee - Exchange of views with the European Centre for Disease Prevention and Control (ECDC) on the outbreak of monkeypox

EP Plenary session - A systematic EU approach to chronic kidney disease

EP Plenary Session.- A European Action Plan Against Rare Diseases

EP Plenary session - Joint debate - Health and disease prevention

Roundtable on Infection Disease Surveillance  - Albright Stonebridge Group  - Speech by David SASSOLI, EP President

ENVI Committee on the Environment, Public Health and Food Safety - Exchange of views with Director of the European Centre for Disease Prevention and Control (ECDC)

Preventing the Spread of Coronavirus Disease ( COVID-19) - hand washing

ENVI Committee meeting - Exchange of views with Dr Andrea AMMON, Director of the European Centre for Disease Prevention and Control (ECDC) - update on the COVID-19 situation

Preventing the Spread of Coronavirus Disease ( COVID-19 ) - Wearing a protection mask

' Reframe Rare ' - Rare Disease Day Policy Event 2020

ENVI committee meeting - Outbreak of Coronavirus pneumonia - Exchange of views with Andrea AMMON, Executive Director of the European Centre for Disease Prevention and Control.

Medical Expertise in Vascular Disease (Angiology/Vascular Medicine): An Urgent Social Need - Concrete European Proposals

The European Centre for Disease Prevention and Control (ECDC)

EP plenary session- Rare diseases

EP Plenary session - Lyme disease (Borreliosis) - Oral question (O-000088/2018 - B8-0417/2018)

Many rare diseases manifest themselves in childhood, resulting in a shortened lifespan and leading to a dependency on care throughout the patients’ lives, causing significant suffering to the patients and their families. Patients affected by rare diseases often spend years enduring a “diagnostic odyssey” before receiving the correct diagnosis, if ever. Most rare diseases lack effective treatments representing an enormous unmet medical need. EU research and innovation is crucial to accelerate the discovery and development of novel therapeutics. Restrictions: ©The material may not be edited and must be shown entirely.

EPRS - 5 facts about rare diseases

During the plenary session (13-16 September 2021) in the European Parliament in Strasbourg, MEPs participate in the joint debate on the health and disease prevention and will debate and vote on two laws to strengthen the European Centre for Disease Prevention and Control and better tackle cross-border health threats. (continuation of the second part of the debate)

Joint debate - Health and disease prevention: MEPs debate (continuation of part 2/2)

During the plenary session (13-16 September 2021) in the European Parliament in Strasbourg, MEPs participate in the joint debate on the health and disease prevention and will debate and vote on two laws to strengthen the European Centre for Disease Prevention and Control and better tackle cross-border health threats. (second part of the debate)

Joint debate - Health and disease prevention: MEPs debate (part 2/2)

During the plenary session (13-16 September 2021) in the European Parliament in Strasbourg, MEPs participate in the joint debate on the health and disease prevention and will debate and vote on two laws to strengthen the European Centre for Disease Prevention and Control and better tackle cross-border health threats. Closing statement by Stella KYRIAKIDES, European Commissioner for Health and Food Safety.

Joint debate - Health and disease prevention: closing statement by Stella KYRIAKIDES, European Commissioner for Health and Food Safety

During the plenary session (13-16 September 2021) in the European Parliament in Strasbourg, MEPs participate in the joint debate on the health and disease prevention and will debate and vote on two laws to strengthen the European Centre for Disease Prevention and Control and better tackle cross-border health threats. (First part of the debate)

Joint debate - Health and disease prevention: MEPs debate (part 1/2)

During the plenary session (13-16 September 2021) in the European Parliament in Strasbourg, MEPs participate in the joint debate on the health and disease prevention and will debate and vote on two laws to strengthen the European Centre for Disease Prevention and Control and better tackle cross-border health threats. Opening statements by Margarita DE LA PISA CARRIÓN (ECR, ES) and Véronique TRILLET-LENOIR (Renew, FR), rapporteurs, and by Stella KYRIAKIDES, European Commissioner for Health and Food Safety.

Joint debate on the health and disease prevention: opening statements by Margarita DE LA PISA CARRIÓN (ECR, ES), Véronique TRILLET-LENOIR (Renew, FR), rapporteurs and by Stella KYRIAKIDES, European Commissioner for Health and Food Safety

This infoclip illustrates exterior and interior views of the the European Centre for Disease Prevention and Control (ECDC) in Stockholm, Sweden and a person consulting a map the situation updates on COVID-19. Based on data provided by the Member States, this European Agency publish a map of EU Member States which show the risk levels across the regions.

Infoclip: European Centre for Disease Prevention and Control (ECDC) – Maps on COVID-19 situation

This infoclip shows the reopening of the Parlamentarium and the House of the European History in Brussels. Views of the sanitary measures taken inside the buildings such as the wear of face maks, temperature sign check, use of hands sanitizer, etc. People visiting the exhibition.

Infoclip: Covid-19 - New security measures: Reopening of the Parlamentarium and the House of the European History

This Infoclip shows travellers waiting to take their flight at the Brussels national Airport. Before boarding, the plane is thoroughly cleaned and disinfected by the cleaning staff.

Infoclip: Covid-19 - Prevention measures - Airplane disinfection

This infoclip shows a reopening after the lockdown of the church Notre-Dame de l'Annonciation d'Ixelles, in Brussels. Believers attening religious service.

Infoclip: Covid-19 - Out of lockdown - Opening of religious services

This infoclip illustrates the sanitary measures taken in the European Parliament building in Brussels, following the Covid-19 (coronavirus) outbreak. Before entering, Each visitor must wear a face mask. At the entrance, each visitor is invited to use the hydroalcoholic gel dispenser before his temperature is controlled. Inside the building, stickers are installed in many crossing points reminding the social distancing measures. Main rooms of the Parliament such as press conference room or the hemicycle are adapted to keep 1,5m distance between the visitors.

Infoclip: Covid-19 - Prevention measures - New security measures and gradual opening of the EP

This infoclip shows people arriving outside testing Center installed in the buildings of the European Parliament in Strasbourg under the circumstances of the coronavirus (Covid-19) outbreak.

Infoclip: Covid-19 - EP buildings used in the fight against COVID-19: People arriving outside testing Center

This infoclip illustrates: the reopening of a restaurant in Brussels

Infoclip: Covid-19 - Out of lockdown - Opening of restaurants

This Infoclip illustrates: Opening of sports clubs

Infoclip: Covid-19 - Out of lockdown - Opening of sports clubs

This infoclip illustrates a Live concert with security distancing in a concert hall in Strasbourg. French band on stage: Lyre le temps

Infoclip: Covid-19 - Out of lockdown - Live concert with security distancing

This infoclip illustrates the prevention measures taken in the rail transport sector during the Covid-19 (coronavirus) outbreak in France. Travellers are invited to wear a face mask when they enter in the railway station and respect the distancing measures in the area. Special stickers are installed inside the station.

Infoclip: Covid-19 - Prevention measures: Rail transport

This Infoclip illustrates development of a Belgian tracing app and testing of tracing in Germany, in the context of the coronavirus (Covid-19) outbreak. The smartphones become a key tool in the fight against the virus. Extract at 02:30, Copyright and related rights waived via CC0/Public Domain https://ncase.me/contact-tracing/

Infoclip: Covid-19 - Health and medical equipment: Development of Belgian tracing app

This Infoclip illustrates Installation of new infrastructures for bicycles

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